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Subscription to Cleft-Talk is free. Simply subscribe and you will immediately begin downloading messages from other parents and cleft-affected persons. Ask questions, offer your advice, share your story and read about other families' experiences. This is a free mailing list expressly for the purpose of providing networking and support for one another.
To subscribe to Cleft-Talk, send e-mail to:
Listproc@mother.com
In the subject portion of your post, write:
no subject
In the body of your message write ONLY the following:
subscribe cleft-talk yourfirstname yourlastname
(For example, subscribe cleft-talk Joanne Green )
Send it and that's it. You will begin by receiving the attached FAQ and by reading the messages that others post. To respond to any message, just hit the relpy function. To post your own message, simply send email to
Cleft-Talk@pa.mother.com .
See you online!
CLEFT-TALK DISCUSSION GROUP FAQ
(frequently asked questions) About this list:
1. This is a discussion group for parents, patients and anyone who is dealing with the issue of a Craniofacial Challenge - particluarly Cleft lip and/or Palate. The purpose here is to gain strength through the support of others. All interested parties are invited to join, but remember, this is a discussion group for a lay audience. If you are a professional working with a crainiofacially challenged population, please word your messages for persons who may not have a medical degree.
2. This is NOT a medical discussion group. We will not dispense medical advice. At all times, we encourage you to seek the advice of your own medical professional. If you do not agree with that advice, we encourage you to consider seeking a second medical opinion. Please, do NOT give medical advice to anyone on this discussion board. If we find a post that we feel dispenses medical advice, we will kill that post and send you a personal warning through your email address. If you are warned too many times, you may be dropped from this mailing list.
3. This discussion group is moderated by Joanne Green, Editor and Director of WIDE SMILES Magazine. The opinions expressed on this discussion board are those of the individual members and not necessarily those of WIDE SMILES. (Unfamiliar with WIDE SMILES? Check out our web page at :
Http://www.adopting.org/ws.html
4. To subscribe to the cleft-talk discussion board, you simply send email to "listproc@mother.com" . In the subject area of your post, write, "No Subject". In the content area, write "subscribe Cleft-talk " (absent the brackets, of course.) No other command will work. This system is not programmed to read messages such as, "I would like to . . . " or, "Please subscribe me to . . . ." You must enter your message exactly as stated or it will not work.
5. To have your address dropped from this mailing list, you can only do it through mother.com. To unsubscribe, write to "listproc@mother.com". In the subject area, write "No Subject". And in the content area write, "unsubscribe cleft-talk " . There is no other way to unsubscribe. Messages asking to be dropped from the mailing list and posted to the discussion group not only will not work, but they will be irritating to other members.
6. This discussion group is here for the purpose of sharing, informing and networking. It cannot replace a living, breathing support group, but it can help parents to feel less alone in their struggles. By the same token, it will give more experienced parents an opportunity to share some of the wisdom they have gathered through the years. Nobody is more qualified than anybody else to share from their experience. No question is unaskable. For many questions, there may be more than one answer. Therein lies the value of a discussion group such as this one. The more active you are, the more valuable this group can be. Please keep to the subject of cleft lip and palate, or craniofacial concerns. Subjects may include, but are not limited to the following:
About Your Participation:
7. We ask that you be an active participant in this group. Let us know you're there. Ask your questions. Throw in your two cents once in a while. We will be having this list monitored by the various professional consultants that make up the WIDE SMILES consulting staff, so there will always be someone reading your post who can speak to your concerns. Besides, the other families who make up the membership will be there to offer support and networking.
8. We want to get to know each other. When you first sign on, write us a post and let us know who you are. Are you a parent? Are you cleft/craniofacially-affected? Where do you live? What are your concerns? etc. If you are a parent, tell us about your child. We want to form a community here where you and others with like concerns will feel welcome to share.
9. This is a family discussion group. We will not allow any form of profanity on this board. No exceptions. When responding to another person's post, (as I so often tell my children) we expect "best behavior." Remember that the other people on this discussion group are real people who have real feelings and do not need to be personally attacked just because someone disagrees with something they said.
10. Personal questions to me - Joanne Green - should be directed to my personal email address: widesmiles@aol.com. If your question has a general appeal, though (such as, "How do I subscribe to WIDE SMILES?" or "How do I go about adopting children born with cleft?") go ahead and ask it on cleftalk. If one subject (such as the two mentioned above) gets asked regularly, it will become part of the FAQ.
11. This discussion group is not the appropriate place to advertise your wares. There is a fine line between sharing and advertising. If you read a good book about cleft that you want others to know about, that is sharing. If you wrote a good book about cleft that you want others to buy, that is advertising. If you actually want to advertise, please contact WIDE SMILES. We sell advertising space in the Magazine. If you are not sure whether what you want to say would be considered sharing or advertising, write to me first via my email address.
About Cleft:
12. If you are the new parent of a cleft-affected infant and you want information concerning your child's medical care, you will want to find a craniofacial team in your area. To locate such a team, call cleftline at 1-800-24 CLEFT. The cleftline is run by the Cleft Palate Foundation.
13. For information regarding cleft, go onto the WIDE SMILES web page and download any appropriate files. You may want to check our web page often, as the information contained on that page rotates regularly. The web page address is as follows:
http://www.adopting.org/ws.html
14. To subscribe to WIDE SMILES, a quarterly magazine delivered to your home via postal mail, send the subscription price of $18 for one year* or $34 for two years*, along with your name, address and phone number to the following postal address:
WIDE SMILES
PO Box 5153
Stockton, CA 95205-0153
*For subscriptions outside the US, the subscription cost is $22 for one year or $34 for two years. We can only accept US funds. please make your checks payable to WIDE SMILES.
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