The Forgotten Children
In 1986, Joy and Jim Jenkins began their quest to adopt. Three years later, on October 6, 1989, they celebrated the adoption of their first child, James Michael... the first AIDS adoption in Arizona. It marked the beginning of a home-based project that was to become the internationally known
Children With AIDS Project of America.
CWA seeks out adoptive parents for HIV infants and children, AIDS orphans, and drug addicted infants. The organization also locates these children who need permanent, loving families, and brings the two together. There is no charge for these services.
Finding their missionWhen the story of their first adoption hit the news, the couple was inundated with letters from around the world - from agencies trying to place abandoned babies with AIDS, and from people eager to adopt AIDS children. With knowledge gained during their own adoption process, and with help from others in the special needs adoption field like the DeBolts of
Adopt A Special Kid, Joy and Jim Jenkins found their calling.
They saw a tremendous gap between the children and potential families, and they began to compile a database of names on both sides of the equation: available children and loving families; then started a process of referring one to the other through agencies, attorneys, churches, and other organizations. Donated computer and office equipment, corporate sponsorship, and charitable donations continue to help this remarkable couple maintain the momentum and growth of their efforts to help those whom they call the "forgotten children."
Who are HIV children?Between 20% and 40% of children born to HIV-infected mothers are themselves infected with HIV. Antibodies passively transferred to the child during pregnancy can appear as HIV infection in test results for as long as 12-15 months, even though the child may not be truly HIV-positive. (This was the case with the Jenkins' son, who tested positive as an infant, but as he grew older, his results turned negative.)
In the case of infants who
are perinatally infected, as many as 50% will die before their second birthdays. A PCR (polymerase chain reaction) test which looks for the DNA of the virus, can differentiate between infants with maternal antibodies and those who are truly infected. When used, results have shown to be 90% accurate when the baby is 4 weeks old, and 99% accurate at 6 months; however, this test may not be widely available.
Number of AIDS orphans is rising dramaticallyChildren who lose their parents to AIDS have been named "AIDS orphans" by the press. It is estimated that the number of these children in the US will reach somewhere between 80,000 - 125,000 by the year 2000. While parents with AIDS are encouraged to make care plans for their children, many do not, can not, or have not, and a large percentage of these children will end up in an already overburdened public welfare system.
Forgotten no moreOne adoption back in 1989 has grown into hope for the children, and hope for the system. The CWA database now numbers over 1,000 waiting families - from all states and three foreign countries. The organization's work has resulted in the placement of many children in permanent and foster homes, and an increased awareness of the needs of HIV children and AIDS orphans.
Today, the
Children With AIDS Project of America is a national publicly supported non-profit organization (501c3) and has moved into offices in Phoenix, where Jim mans the computers.
In addition to its primary services of referring families to children and children to families, CWA services include AIDS advocacy and education, speaking engagements, and networking with support groups.
For more informationThe
Children With AIDS Project of America offers books, tapes, pamphlets, and information packets for those interested in adopting, becoming foster parents, or providing respite care. Information is also available on speaking engagements, advocacy, and other issues surrounding adoption.
Visit their
Web site, or email Jim Jenkins at
jimjenkins@aidskids.org.
More•
Adopting a Waiting Child•
Adopting Parents Center•
Becoming a Foster Parent•
Special Needs Adoption•
Children With AIDS Project•
World AIDS DayAdditional Resources•
AIDS Orphan Project - IAVAAN
•
National Pediatric AIDS Network (NPAN)•
Women Alive - The Body: An AIDS and HIV Information Resource
Comments
It's so true that you should love the children you feel drawn to, and definitely not feel guilty if you don't feel you can handle the unique challenges of a child with complex medical needs. I think for the most part people that know themselves know what they can and can't handle, and guilty should never be a motivating factor for taking on the awesome responsibility of caring for a child with medical difficulties. There are also those that think only people that have cared for ill children or family members before should take on these children (or at least those that give preference for adoption by people that fit that profile). It seems logical that it would be the case that the best case scenario would be at least one parent with fairly deep medical knowledge, such as a professional doctor or nurse. But I definitely think anyone willing to love through those challenges, and to learn all they can to support the child medically and emotionally will be capable of making a wonderful home.
Posted by: bandstand at 10/15/2005 09:19 PM
You know, the stories shared here ARE beautiful, yet I wouldn't want anyone to feel guilty if they do not feel moved to adopt children with medical difficulties. There are people who love to serve in this way, but others would experience it as burdensome, and that's not good for kids, either. It doesn't serve the world well if we do things just to be noble. There are plenty of physically uncomplicated children with tremendous emotional needs, just like there are physically challenging kids who aren't emotionally complicated - they just want to be loved. No matter what your skills are for dealing with the different kinds of difficulties, you can make a big difference in this world by loving the children you feel drawn to.
Posted by: accomplice at 10/15/2005 05:25 PM
I think it's fantastic the attention that this special segment of the population has started to receive in recent history, but I do find it troubling what typically happens to AIDS orphans in particular when thrust into the welfare system.
I think it's easy for welfare professionals, and anyone for that matter, to see physical challenges in children and others as more pressing than emotional/mental challenges, in part because there are very specific things that can be done to help heal physical ailments -- vaccinations, targeted medication, etc -- but there are not necessarily cut-and-dried ways of treating some of the mental and emotional anguish, in part because there is not as much known about many mental disorders and how to treat them; even the drugs used to treat things such as depression, hyper-activity, etc. in children have not been around long enough to truly understand their long-term effects or why they work in the first place. Plus, there is a natural stygma associated with the complexity of some mental illnesses (that's not to say physical illnesses aren't complex, but they are definitely easier to label as "A" or "B" caused by "X" or "Y"). People fear truly addressing mental and emotional problems, regardless of their cause We see it every day in the way people with mental illnesses are treated in society. If you have suffered from a mental illness or emotional trauma, there's societal pressure to keep it quiet, as it is often viewed as a weakness, or, horribly, as something "affected" in order to gain attention.
AIDS orphans that are not HIV positive, because of limited resources of the welfare system or for whatever reason I think have more of a tendency to slip through the cracks and not get treated appropriately for the emotional trauma they have been through due to the loss of their parents. Because they don't have physical symptoms or the HIV virus or AIDS, or the need for medication to keep these physical symptoms under control, they often become just more children crowding an already over-crowded system of older children, that often have a difficult time being placed as it is. And many of them act out because they have been traumatized, and thus are even more difficult to place in stable homes. Of course, ideally, the world would stop thinking of emotional and mental challenges as taboo for discussion, but because this is probably not going to happen over night, I think there needs to be more of an awareness of the special circumstances of these AIDS children to help them through it. While no more or less important than any other child, they certainly have special circumstances to deal with that should be addressed and treated in whatever way that would help them; if it had not been for their parents illness, many would still be in their original homes, with their birth mothers/fathers.
Posted by: bandstand at 10/13/2005 04:31 PM
This article shows how much impact just one couple can have for so many other families. The love that they are showing not just for their own adoptive child, but for the millions of other children that are HIV positive, is to be commended. The fact that they are not only uniting these needy children with loving and steady families, but are also speaking and teaching the rest of the country and the world about these children shows the care and concern that they have for the plight of these children. This article really opened my eyes up to this very important segment of society that needs love just as much as any other child does.
Posted by: jmrodg at 10/09/2005 08:15 PM
The advances that have been made in the area of adoption for HIV/AIDS babies, just in the past barely 20 years, their adoptive parents and families absolutely astound me. This story is just another inspirational testament to what dedication, perserverance and love without bounds or prejudice can accomplish, and is a welcome change to so much of the negative stories we are daily inundated with regarding AIDS and its devastation on a daily basis.
When I started working in foster care and adoption a mere 4 years ago, I worked for an agency that had started one of the first successful programs specifically designed to meet the complex needs of these special children. They were working with professionals to seek out these babies early in life, and finding funding countless vaccinations and medical plans that would cover the cost of treatment for children with HIV and AIDS, or simply children that had lost their parents to the disease but were themselves uninfected (a rarity indeed!). Because of their work, many babies were able to fend off infection by the disease and in many cases eliminate the threat of HIV with vaccinations given early enough in life so these children had a chance. On top of that they were finding loving permanent homes, and not just make-shift foster homes, for these babies, children and young adults that would give them a sense of stability and a chance to heal, thrive and grow in a loving environment. Even at that time, they were one of the few programs in the world doing the kind of work they were doing, fighting on a daily basis to preserve the opportunity for a good, healthy and productive life that every child should have.
It's great to see that other agencies and organizations have followed suit, and that these programs are growing in scope, scale and funding. It's also wonderful to see there are loving and open-minded people willing to take on the awesome responsibility of an HIV or AIDS-infected child to give him/her the life and boundless opportunities he/she deserves.
Posted by: avalanche at 10/09/2005 09:42 AM
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