Renee Kloss: From Pain to Joy - page 3
Part 3: Productive anger Less than 48 hours after being delivered by c-section, Renee was furious. Outside the neonatal unit, looking in, unable to touch her baby, the anger peaked.
"Looking at my poor baby, who we couldn't even touch, being given the look by eight doctors - when they looked at me, then at the baby and just shook their heads, I lost it. Over the next five days, I drove (yes, I wasn't supposed to) all over, trying to find some way to get my medical records to help my baby."
And that anger is what prompted Renee to do something, and that 'something' is Triad Search for Chronic Illness (TSCI).
Volunteer HelpTSCI is a place for those suffering from chronic illnesses to get help with their searches for medical information. Paid searchers, professionals, and others donate their time and services to this effort.
TSCI operates a mail list community, and registry. The new
Web site provides an overview of the group's purpose and mail list sign-up. New members receive an application about their search, are assigned a case number, regional coordinator, and searcher.
The group provides a place of support and resources for dealing with chronic illnesses in the absence of records. And for those who would like to help others, volunteer searchers are always welcome.
EpilogueRenee has been reconnected with her birth family and, as expected, has learned that diabetes runs in her birthmother's family, as do asthma and high blood pressure. Alcohol and drug abuse are, or have been, present on both sides of her birth family. Having access to this information, Renee believes her childhood - spent in and out of hospitals and doctors' offices - could have been quite different. And of course, she believes that her son would have been spared so many tests for the unknowns.
JR and big brother |
JR? Today, he's a healthy 3-year old. His heart problems were, fortunately, not as serious as originally feared, and he outgrew them by age 2. But for Renee, the scare, and finally the anger, have led to a new Web-based service for adoptees and those who care for them:
TRIAD SEARCH FOR CHRONIC ILLNESS> > Page
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Photo is the property of Renee Grande-Kloss, used with permission
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